Life
Lines AIDS Prevention Project for the Homeless
THE LIFE LINES AIDS AWARENESS
STUDY:
A REPORT ON 1990 SURVEY RESULTS
by
Russell
K. Schutt, Ph.D.
University
of Massachusetts at Boston
Suzanne
Gunston, B.S.N., R.N.
Director,
Life Lines Project
John
O'Brien
Director,
Shattuck Shelter
Life Lines is a program of
Positive Life Styles Inc. and is supported by the Shattuck Shelter. The program is funded by the Commonwealth of
Massachusetts Department of Public Health through a grant from the U.S. Centers
for Disease Control.
ACKNOWLEDGEMENTS
Interviews were conducted by John
Flaherty, Stephanie Howard, Doug Klayman, Lydia Todd and Dian Webber
Fitzpatrick. John Flaherty, Tatjana
Meschede and Joan Sinkiewicz processed data and assisted in programming. We are grateful for their assistance. We thank Roy Morrison and the staff at the
Boston Night Center and the staff at the Shattuck Shelter for many forms of
support and assistance. We also
gratefully acknowledge the assistance of Janet Bath, Department of Public
Health. Most importantly, we thank the
persons interviewed at the Shattuck Shelter and the Boston Night Center for
their time and insights.
EXECUTIVE SUMMARY
**Guests
were surveyed at two locations: the
Shattuck Shelter, where the AIDS Prevention Project is headquartered, and the
Boston Night Center.
**AIDS
prevention activities were more common at the Shattuck Shelter than at the
Night Center.
**One-third
of the guests at the Shattuck Shelter had been tested for HIV infection and
another third wanted to be tested. The
corresponding percentages at the Night Center were one-quarter and one-half.
**Few
guests at either shelter had attended an AIDS education meeting, but more than
three-quarters said they would attend an AIDS education meeting if it were at a
convenient time; about two-thirds said they would like to learn more about AIDS
and felt that AIDS education was considerably or extremely important.
**About
two-thirds of the guests were comfortable with asking for, or taking, condoms
and bleach.
**About
two in five Shattuck guests perceived that AIDS education had affected their
own or other guests' behavior; about ten percent fewer Night Center guests
shared this perception.
**Almost
half of the guests at both shelters worried a lot about HIV infection.
**On
average, guests at both shelters answered correctly 75 percent of a series of
AIDS knowledge items.
**Almost
all guests knew that you could become infected with HIV from sex or sharing
needles with an infected person, and no more than one in five thought that HIV
could be transmitted by casual contact.
About three quarters knew that drug users could avoid HIV.
**More
than half of the guests at both shelters mistakenly believed that condom use
doesn't help infected people.
One-quarter or more believed that HIV is transmitted by an insect bite,
by kissing, or by giving blood.
**About
two-thirds knew that you could still feel healthy after infection with HIV and
even more knew that only a blood test tells whether you are infected with HIV
and that people do not die soon after becoming infected.
**Just
over half of the Shattuck guests knew someone with AIDS, compared to just over
one-third of the Night Center guests.
**More
knowledge about AIDS was associated with less worry about HIV and more interest
in learning about AIDS. Awareness of
AIDS prevention activities was associated with interest in learning about AIDS,
but not with higher levels of knowledge about AIDS.
**Knowing
someone with AIDS was associated with more knowledge about AIDS only at the
Shattuck Shelter.
**Guests
who reported more depressed feelings were less knowledgeable about AIDS but
more interested in AIDS education.
**Black
and Hispanic guests at both shelters were less knowledgeable about AIDS but
more interested in AIDS education.
**There
were no differences in AIDS awareness between men and women.
Table of Contents
Page
Introduction.............................................. 1
Methodology............................................... 1
AIDS Prevention........................................... 3
Components 3
Overall
5
AIDS
Awareness............................................ 6
Components 7
Overall
9
Influences on AIDS
Awareness..............................10
Conclusions...............................................11
Description
of AIDS Awareness 11
Individual
Correlates of AIDS Awareness 12
Impact
of the Life Lines Project 13
Policy
Implications.......................................14
Appendixes................................................17
Correlation Matrices 17
AIDS Survey Questions 18
Footnotes.................................................22
List of Tables
Page
1. AIDS
Prevention Activities.......................4
2.
Participation in AIDS Prevention.................4
3.
Comfort with AIDS Prevention.....................5
4. Evaluation
of AIDS Prevention....................5
5. AIDS
Knowledge...................................7
6.
Beliefs about AIDS...............................8
7.
"Worry About Getting AIDS".......................8
8. Know
Anyone With AIDS............................9
9.
Influences on AIDS Knowledge and Interest.......11
10. Influences on Behavior Change,
Worry............11
List of Figures
1.
Number of AIDS Prevention Acts Aware of.......... 6
2.
Percent Correct on AIDS Knowledge Test........... 9
Public
health officials estimate that an increasing number of homeless persons in
Massachusetts are infected with HIV. For
shelter providers, this knowledge represents an urgent service mandate: to decrease the risk factors associated with
transmission of HIV in the homeless population and to improve the quality of
care available to those who are infected.
The
Life Lines Project was funded in 1989 by the federal Centers for Disease
Control, through the Massachusetts Department of Public Health. The program is supported by and located at
the Shattuck Shelter, a 186 bed shelter for homeless adults in Boston. The Life Lines Project seeks to decrease the
transmission of AIDS among the homeless by coordinating prevention activities
in the Massachusetts shelter system and by developing a model of prevention
education which specifically targets the needs of homeless individuals.
In
spite of growing attention to the problem of HIV infection among the homeless,
little is known about AIDS awareness or the effectiveness of AIDS prevention
activities in the homeless population.
In order to reduce this knowledge gap and to provide the project with a
baseline from which effective program planning could evolve, the Life Lines
Project sponsored a survey of homeless persons at a shelter and a night time
drop-in center for the homeless in Boston.
This report describes the results of this Life Lines AIDS Awareness
Study.
Methodology
Ninety-one
homeless persons were interviewed at two locations: the Shattuck Shelter and the Boston Night
Center. The amount of AIDS prevention
activity to which guests had been exposed at these locations was expected to
differ.
The
Shattuck Shelter is a 186-bed shelter in Boston's Jamaica Plain community,
offering a wide range of service programs and health care facilities for the
homeless, including respite beds for homeless persons discharged from local
hospitals. The offices of the Life Lines
AIDS Prevention Project are at the Shattuck Shelter. Project and shelter staff have engaged in a
range of prevention activities, including discussion groups, daily distribution
of condoms and bleach vials (for cleaning needles), frequent distribution of
literature and staff training.
The
Boston Night Center provides a night-time resting and socializing area for 60
homeless adults in downtown Boston. Most
activities occur in a small room used during the day as a cafeteria; staff
serve food, encourage guests to engage in conversation and refer guests to
medical and other services. A registered
nurse provides some AIDS prevention activities,
including condom distribution and small
educational groups. The Life Lines
Project provides technical support as well as educational and risk reduction
materials.
These
two shelters were selected to provide a contrast between a setting for homeless
persons where more AIDS prevention activities had occurred and a setting where
these activities had been less common.
One indication of the difference in prevention activities between these
two settings is the number of condoms distributed between August and November,
1990: on average, 1.25 condoms per guest
each month at the Night Center and 2.88 per guest each month at the Shattuck
Shelter.[1]
The
higher level of prevention activities at the Shattuck Shelter is also reflected
in differences in other prevention activities:
prevention posters were displayed at the Shattuck Shelter but not at the
Night Center; condoms and bleach vials were available daily on an anonymous
basis at the Shattuck Shelter but only weekly at the Night Center; greeting
cards with prevention information had been distributed on four occasions at
Shattuck but only once at the Night Center.
Shattuck guests in its "stabilization" program for alcoholics
were required to attend weekly AIDS education groups, while voluntary meetings
for other guests were held monthly; the Night Center held voluntary weekly AIDS
education meetings. In neither shelter
were AIDS education groups attended by more than a few people. Clearly, the Night Center does not represent
a "control" condition where AIDS prevention activities had not
occurred, but it is a setting where prevention activities had been less common.
A
team of seven current or former UMass/Boston graduate students interviewed
guests during August and September, 1990.
One-third of the Shattuck Shelter's guests were selected for interviews
using a systematic random sampling procedure.
Conditions at the Boston Night Center did not permit a random sampling
procedure; instead, interviewees were selected nightly on an availability
basis. The total number of interviews
completed was nearly equivalent to the total number of persons using the Center
on any particular night. All subjects
signed a consent form before the interview and received three dollars after the
interview. In both locations, the
refusal rate was approximately one in five.
The
interview schedule contained 155 fixed-choice questions (some with multiple
parts) and required 45 to 90 minutes to complete. Questions were designed to provide a
comprehensive assessment of AIDS awareness, AIDS prevention activities, and
related attitudes and behaviors. Other
interview sections measured other physical and mental health problems, social
supports, income supports, residential experience and satisfaction with shelter
services.
Two
indices were constructed in order to facilitate data analysis. The AIDS Prevention Index represents the
number of prevention activities that the respondent had observed at the
shelter. The AIDS Knowledge Index is the
percent of 18 questions about AIDS that the respondent answered correctly.
Most
of the report describes the distribution of AIDS awareness at the two shelters,
including level of knowledge, level of comfort with proactive prevention
efforts, perception of prevention activities, interest in learning about AIDS
and worry about AIDS. In addition, the
report identifies the characteristics and attitudes of individuals that are
associated with AIDS awareness. Possible
influences examined are self-reported reading ability, length of time homeless
and at the shelter, involvement in shelter programs, physical and mental
health, substance abuse, social supports, and age, race and sex.
These
analyses are used to identify the impact of the Life Lines project on AIDS
awareness. Specifically, conclusions
about program impact will be based on: (1) the difference between the Shattuck
Shelter and the Night Center in AIDS knowledge, AIDS prevention activities, perceived
behavioral impact of AIDS prevention activity and worry about HIV infection;
(2) the relation between awareness of prevention activities and AIDS knowledge
and orientation; (3) the relation between participation in prevention
activities and AIDS knowledge and orientation.
The
report concludes with a list of implications for program planning.
AIDS Prevention
Respondents
were asked if they had noticed four specific AIDS prevention activities at the
shelter, as well as about their interest in participating in AIDS education and
prevention activities. An index of
perceived prevention activities was constructed from all relevant questions for
use as a summary measure, while data from the index components and from other
questions also are presented separately.
Components
As
anticipated, guests perceived a much higher level of AIDS prevention activities
at the Shattuck Shelter than at the Night Center (table 1). In fact, awareness of at least one AIDS
prevention activity--distribution of condoms--was nearly universal at the
Shattuck Shelter. Two-thirds had noticed
bleach bottles for drug users, the other prevention activity occurring on a
daily basis, while about half had received prevention information and a special
greeting card, on a holiday, with a condom.
The corresponding percentages at the Night Center ranged from one half
(noticed condoms) to less than one third (received prevention information or a
card with a condom)
Table
1
AIDS
Prevention Activities
Percent of Guests Aware of Shattuck Night Ctr
Prevention Activities
Have Read Info at Shelter 52% 30%
Noticed Condoms Available 92% 51%
Received Card with Condom 46% 26%
Noticed Bleach Bottles 68% 36%
The
two shelters also differed in the proportion of guests who had been tested for
HIV infection and who had attended an AIDS education meeting, although the
differences were smaller in size (table 2).
One-third of the Shattuck guests had been tested for HIV infection,
compared to one-quarter of those at the Night Center. One-seventh of the Shattuck guests had
attended an AIDS education meeting, compared to one-twentieth of those at the
Night Center. At both shelters, between
one-quarter and one-third either did not want to be tested for HIV infection or
had heard of an AIDS education meeting but had declined to attend.
Table 2
Participation
in AIDS Prevention
Like to Get
Tested Shattuck Night Ctr
Have Been Tested 31% 24%
Yes 33 49
Not Sure 12
5
No
24 22
(51) (37)
Attended AIDS Educ. Meeting
Attended 14%
5%
Haven't Heard About One 55 65
Heard But Didn't Go 31 30
(51) (37)
Between
two-thirds and three-quarters of the guests at both shelters felt comfortable
with most of the steps involved in lessening their risk of HIV infection (table
3). Guests felt particularly comfortable
taking a condom from a basket, speaking to a staff member about AIDS, and about
attending an AIDS education meeting--somewhat more at the Shattuck
Shelter.
About
two-thirds of the Shattuck Shelter guests were interested in learning more
about AIDS and a similar proportion thought AIDS education activities were
considerably or extremely important. The
comparable proportions were slightly lower at the Night Center.
Table
3
Comfort
with AIDS Prevention
Feel Comfortable - Prevention
Shattuck Night Ctr
Taking Condom from Basket 76% 86%
Asking Male Staff for Condom 65% 75%
Asking Female Staff for Condom 61% 61%
Taking Bleach from Basket 67% 54%
Asking Staff Member for Bleach 63% 62%
Speak to Staff about AIDS? 78% 92%
Like to Learn More 67% 60%
Would Attend AIDS Meeting 72% 86%
Importance of AIDS Education
NOT AT ALL 10.4% 10.8%
SLIGHTLY 6.3 13.5
MODERATELY 14.6 10.8
CONSIDERABLY 10.4 18.9
EXTREMELY 58.3 45.9
(48)
(37)
The social climate for persons living with
AIDS was viewed as roughly comparable at both shelters: about three-quarters of the guests thought
that persons infected with HIV were treated more poorly than others (table
4). Between one-fifth and two-fifths
believed that AIDS education had affected their own behavior or that of others;
a perception that was held more widely at the Shattuck Shelter. Almost all guests at the Night Center and
three-quarters of guests at the Shattuck Shelter thought that the program staff
should do more to prevent AIDS.
Table 4
Evaluation
of AIDS Prevention
Evaluation of AIDS Prevention Shattuck Night Ctr
If AIDS, Treated Poorly 79% 73%
Shelter Staff Should Do More 74% 92%
AIDS Educ. Affected Behav. 28% 19%
AIDS Educ. Affected Others 38% 30%
Overall
An
overall indication of the extent of prevention activities at the two shelters
is provided by a count of the number of prevention activities that shelter
guests had observed. The distributions
of this count for the two shelters are presented in Figure 1. On average, Shattuck guests were aware of 60
percent of the prevention activities mentioned, compared to 34 percent among the
Night Center guests. The distributions
were skewed in opposite directions, with many Night Center guests aware of no
prevention activities and many Shattuck guests aware of all five.
Figure 1
Number of AIDS Prevention Acts Aware of*
I
----------+******************
.00 I 4 I (11)
*
----------+******************
I
---------------*
1.00 I(6) 6 *
---------------*
I
------------------*-+
2.00 I(7) 8 I
------------------*-+
I
---------------*----------------------+
3.00 I(6) * 15 I
---------------*----------------------+
I
----------*---------+
4.00 I(4) *
8 I
----------*---------+
I
-----*----------------------+
5.00 I(2) * 11 I
-----*----------------------+
I
I.........I.........I.........I.........I
0 4 8 12 16
Frequency
*Dashed bars indicate Shattuck
Shelter respondents, asterisks indicate Night Center respondents. Frequencies in parentheses are for the Night
Center.
Valid
cases
Shattuck 52
Night
Center 38
AIDS Awareness
Respondents'
knowledge and concerns about AIDS were measured with a series of statements concerning HIV transmission and the
development of AIDS, and several questions concerning worry about AIDS. Respondents were also asked whether they knew
anyone with AIDS. Responses to the
knowledge statements were scored as correct or incorrect and then combined to
create an AIDS knowledge index.
Components
Many
guests knew the most basic facts about AIDS and how to prevent it, and the
level of basic knowledge did not differ substantially between the two
shelters. Almost all guests knew that
you could get HIV from unsafe sex or sharing needles with an infected person
(table 5).[2]
No more than one in five thought, mistakenly, that people can get HIV
from casual contact: a toilet seat used
by an infected person, being near or hugging an infected person, eating food
prepared by an infected person. However,
one-quarter believed that you could get HIV from an insect bite, two in five
believed that you could get HIV from kissing an infected person, and three in
five believed that you could get HIV from giving blood.
Table 5
AIDS
Knowledge
Percent Who Believe These Shattuck Night Ctr
Things Can "Give you AIDS"
Being Near Infected People 21% 18%
Hugging an Infected Person 8% 14%
Being Bitten by an Insect 26% 29%
Having Sex with Infected Person 98% 95%
Sharing Needles with Drug
Users 100% 95%
Giving Blood
61% 65%
Toilet Seat Used by Infected 16% 19%
Kissing Infected Person on
Mouth 37% 41%
Eating Food Prepared by Infected 22% 22%
Almost
all the guests knew that you could do a lot to avoid HIV, including using
condoms and limiting the number of sex partners; about three quarters knew that
drug users could avoid getting HIV and almost nine in ten knew that AIDS is not
confined to gay men (table 6). About
two-thirds understood the basics of the development of AIDS--that you could
still feel healthy after being infected and that there is no cure; even more
knew that only a blood test tells whether you have HIV and that people do not
die soon after they are infected.
Although
there were almost no differences between the two shelters in knowledge of how
people get HIV, Night Center guests were somewhat less well informed about AIDS
not being just a gay men's disease, about the fact that people do not die soon
after they have been infected, and about the value of condom use even after
infection with the AIDS virus. Night
Center guests also were somewhat more fatalistic about the odds of getting
AIDS, although they were slightly better informed about the fact that people
can remain healthy for a long time after they are infected.
Table
6
Beliefs
about AIDS
Percent Agreeing with
Statements About AIDS* Shattuck Night Ctr
I'll Probably Get AIDS** 12% 25%
There's No Cure for AIDS 61% 58%
Infected People Can Still Feel
Healthy 67% 78%
AIDS Only Affects Gay Men 2% 11%
The More Sex Partners, More Risk
of AIDS 94% 92%
No Way Drug Users Can Avoid AIDS 26% 25%
I'm Afraid Around Infected People** 44% 30%
It Helps a Lot to Use a Condom 94% 100%
Only a Blood Test Tells if
Infected 88% 84%
People Can Do a Lot to Avoid
Infection 94% 92%
Men Can't Get AIDS From Sex with
Woman 10% 16%
People with AIDS Die Soon After
Infected 12% 35%
A Condom Doesn't Help After
Infection 66% 54%
**Item not included in AIDS
Knowledge Index.
Many
guests, just under half, worried a lot at both shelters about HIV, and an equal
proportion perceived such worry among other guests (table 7). About one-third did not worry at all about
HIV. There were no substantial
differences between the two shelters in propensity to worry about HIV.
Table
7
"Worry
About Getting AIDS"
Shattuck Night Ctr
Percent Who "Worry
About Getting AIDS"
A LOT 44.0% 44.7%
SOMEWHAT 20.0 18.4
NOT AT ALL 36.0 36.8
100.0%
99.9%*
(50) (38)
Percent Who Think
Other Guests "Worry
About Getting AIDS"
A LOT 44.2% 40.0%
SOMEWHAT 34.9 28.6
NOT AT ALL 20.9 31.4
100.0% 100.0%
(43) (35)
*Percents may not add to 100 due to
rounding error.
Overall
Guests'
knowledge of HIV transmission information was assessed by calculating the
percentage of 20 AIDS knowledge items in the survey that were answered
correctly (see tables 5, 6). The score
distributions are presented in graphic form separately for the two shelters
(figure 2). The mean score for the
Shattuck Shelter, 76 percent correct, was almost identical to the mean for the
Night Center, although the distribution of scores was more clustered toward the
high end at the Shattuck Shelter.
Figure
2
Percent
Correct on AIDS Knowledge Test
***
40 * *
***
I
--------*
50 I 3 *
--------*
I
----------*
60 I 4 *
----------*
I
---------------------*-----------+
70 I(8) * 13 I
---------------------*-----------+
I
----------------*-----------+
80 I(6) * 11 I
----------------*-----------+
I
----------------------------*---------+
90 I(11) * 15 I
----------------------------*---------+
I
----------*--+
100 I(4) *5 I
----------*--+
I
I.........I.........I.........I.........I
0 4
8 12 16
Frequency
*Dashed bars = Shattuck Shelter
respondents, asterisks indicate Night Center respondents. Night Center frequencies in parentheses.
Shattuck Mean = 76.725 Std dev = 12.892 N = 51
Night
Center Mean = 74.541 Std dev =
15.800 N = 37
Knowledge
of someone with AIDS is a likely influence on knowledge of AIDS facts and worry
about HIV. As indicated in table 8, more
than half of the Shattuck guests knew someone with AIDS, compared to just over
one-third of the Night Center guests.
This knowledge could, of course, reflect a greater awareness of AIDS at
the Shattuck Shelter due to the Life Lines project, or a larger presence of
AIDS patients due to the respite beds at the shelter for indigent persons
discharged from the adjacent Shattuck Hospital and other hospitals.
Table 8
Know Anyone With AIDS?
Shattuck Night Ctr
YES 55.8 36.8
NOT SURE 1.9
2.6
NO 42.3 60.5
(52) (38)
Influences on AIDS Awareness
Awareness
of prevention activities at the shelter was not in itself associated with the
AIDS knowledge score, but it was positively associated with interest in
learning more about AIDS (see appendix 1).
Those who knew less about AIDS worried more about HIV infection. However, those who worried more about
infection were also more interested in learning about AIDS. In addition, knowledge about AIDS was higher
among those who knew someone with AIDS, but this relationship occurred only at
the Shattuck Shelter; knowing someone with AIDS was not associated with more
knowledge about AIDS at the Night Center.
Interest
in being tested for HIV increased with feeling comfortable with AIDS prevention
activities, interest in further AIDS education and worry about HIV. The same factors were associated with a
belief that AIDS education activities had affected the respondent's
behavior. Those with higher levels of
AIDS knowledge seemed to be more pessimistic about the effect of AIDS education
on other shelter guests.
AIDS
knowledge was independent of many individual characteristics: time homeless, time using the shelter,
literacy and contact with service agencies.
However, AIDS knowledge declined with symptoms of depression at the
Shattuck Shelter, while interest in AIDS education increased with depression
symptoms (table 9). At both shelters,
AIDS knowledge was lower among minorities than among whites, but interest in
AIDS education was particularly high among minorities.
Table 9
Influences on AIDS Knowledge and Interest
Percent with High Level of:
AIDS Knowl. Prev. Interest
Not Depressed 56%(45) 33%(45)*
Depressed 39%(41) 55%(40)
White 54%(41) 27%(41)*
Minority 40%(47) 61%(46)
*Significant at the .05 level.
Different
individual characteristics help to explain variation in other aspects of AIDS
awareness (table 10). Length of time
homeless was associated with fewer reports of a behavioral impact of
shelter-based AIDS prevention efforts. Less perceived social support was associated
with more worry about HIV but less report of having changed behavior in
response to AIDS prevention activities.
Younger people were somewhat more worried about HIV.
Table 10
Influences on Behavior Change, Worry
Percent with High Level of:
Behavior Change Worry
Homeless less than 1 Yr. 36%(32)* 35%(51)
Homeless more than 1 Yr.
10%(29) 24%(29)
Low Social Support 39%(44)* 44%(43)*
High Social Support 19%(43) 16%(43)
Under 35 Years Old 29%(38) 40%(37)
35 Years Old or More
29%(48) 22%(48)
Conclusions
The
goals of the Life Lines AIDS Awareness Study were to describe AIDS awareness at
two shelters, to identify the individual characteristics associated with AIDS
awareness, to evaluate the impact of the Life Lines Project, and to develop the
policy implications of the findings. The
conclusions are organized around the first three of these goals, with the
policy implications presented in a separate section.
Description of AIDS Awareness
The
homeless persons surveyed knew many of the basic facts about AIDS prevention
but varied in their awareness of specific transmission and health care
issues. Almost all respondents
understood the danger of unprotected sex and unclean needles, but almost
two-thirds thought that giving blood was a hazard and a significant minority
believed that kissing, insect bites and food were potential sources of HIV
infection.
The
value of condoms and other prevention measures was widely recognized, but a
large number were unaware of the long latency period of the disease and of the
ability of drug users to avoid infection; most strikingly, more than half were
not aware that a condom was helpful even after infection.
Overall,
the level of AIDS awareness did not differ between the two shelters. However, respondents reported much more
prevention activity at the Shattuck Shelter than at the Night Center. Almost all guests at Shattuck had noticed the
availability of condoms, two-thirds had noticed bleach vials and a majority had
read information about AIDS at the shelter.
The corresponding percentages at the Night Center were twenty to forty
percent lower. Guests at Shattuck were
more likely to have attended an AIDS education meeting and to have been tested
for HIV.
Interest
in AIDS prevention activities was high at both shelters. Almost four in five were interested in being
tested for HIV or already had been tested.
Most had not attended an AIDS education meeting, but the reason seemed to
be that they hadn't heard of these meetings:
about three-quarters said they would attend an AIDS education meeting if
it was at a convenient time, two-thirds wanted to learn more about AIDS and
thought AIDS education was considerably or extremely important.
Social
inhibitions did not seem to create a major barrier to the effectiveness of AIDS
prevention activities: just one-third of
the respondents were reluctant to ask for condoms or bleach and less than
one-quarter were unwilling to take condoms anonymously or to speak to staff
about AIDS.
Individual Correlates of AIDS
Awareness
The
findings reported here and a supplementary factor analysis (not reported)
suggest that what has been termed "AIDS awareness" in this report
actually has multiple dimensions; that is, there are distinct
"clusters" of attitudes concerning different aspects of AIDS
awareness. One dimension is primarily
cognitive and involves an association between knowledge about AIDS and reduced
worry about HIV. Another dimension involves
prevention activity directly: exposure
to prevention activities, feeling comfortable about prevention activities, and
perception that others worry about HIV.
A third dimension concerns interest in AIDS prevention and AIDS
education, which is also related to exposure to prevention activities. A fourth dimension involves perceptions of
behavior change in self and others as a result of AIDS prevention activities,
which is also related to feeling comfortable with prevention activities.
If
AIDS awareness is a multidimensional phenomenon, different strategies are
likely to be required to influence different awareness dimensions. This is also suggested by the differing
relationships between individual characteristics and particular aspects of AIDS
awareness: AIDS knowledge was higher
among whites and those who were less depressed, but interest in AIDS education
was higher among minorities and those who were more depressed. Younger age and lower levels of social
support were both associated with more worry about becoming infected. Gender, literacy and contact with other
service agencies were not related to any aspects of AIDS awareness.
Impact of the Life Lines Project
Did
the Life Lines AIDS Prevention Project have an impact on AIDS prevention
activities or AIDS awareness? There was
substantial evidence of a positive project impact on prevention activities: (1) About ten percent more of the respondents
at Shattuck than at the Night Center reported that AIDS education efforts had
affected their own behavior and the behavior of other shelter guests. (2) About twenty percent fewer Shattuck
respondents thought shelter staff should do more to prevent AIDS, compared to
the Night Center. (3) Awareness of AIDS
prevention activities was much more common at Shattuck than at the Night
Center. (4) More of the respondents who
wanted to be tested for HIV had been tested at Shattuck. (5) More of the respondents who had heard of
an AIDS education meeting had actually attended one at Shattuck. (6) More of the Shattuck respondents thought
AIDS education was extremely important.
(7) Fewer Shattuck respondents believed that they would eventually get
AIDS. In addition, exposure to AIDS prevention
activities was associated with more interest in AIDS prevention and less worry
about HIV infection.
There
was much less evidence of project impact on AIDS knowledge: (1) There was no difference in overall AIDS
knowledge between the two shelters; Shattuck respondents seemed better informed
on only two measures--they were less likely to think that AIDS was a gay men's
disease or that people die soon after they are infected with HIV. (2) There was no difference in amount of
worrying about HIV between the two shelters.
(3) There was no relationship between the amount of prevention activity
to which the respondent had been exposed and their overall knowledge about
AIDS.
The
interpretation of one other important difference between the two shelters is
less clear. Shattuck guests were much
more likely to know someone who had AIDS; whether this could have been due to
the medical respite beds at Shattuck or to more open discussion about AIDS
stimulated by prevention activity, it suggests a greater openness to future
AIDS prevention efforts.
It
is understandable that the Life Lines project appeared to have a greater
influence on awareness of and interest in prevention activities than on
knowledge of AIDS prevention facts, since the most frequent and visible project
activities, distribution of condoms and bleach vials, were themselves oriented
more to prevention than to knowledge.
Attendance at AIDS education meetings was uncommon and unlikely to have
had a noticeable impact on the total shelter population; furthermore, those who
had received project literature, like those who had attended meetings, may not
have read or understood the material.
But
the ultimate goal of the Life Lines AIDS Prevention Project is to reduce risk
behavior, not simply to increase knowledge about risk. Indications of the project's impact on
prevention activities and individual behavior are thus potentially of much
greater significance than would be indications of project impact on knowledge
about the role of insects, kissing or food preparation in HIV
transmission.
Judgments
of the project's effect must also be tempered due to three methodological
limitations. First, the survey did not
attempt to measure directly participation in prevention activities--so the
criteria used to identify project effects are not direct indicators of project
goal achievement. Second, the comparison
between the Shattuck Shelter and the Night Center, which underlies most of the
conclusions about project effects, was not a comparison between a shelter where
AIDS education had occurred with one where it had been absent. Use of a true "control group" for
comparisons may have revealed more project effects. Finally, the Boston Night Center was not a
true random sample. All conclusions
based on the Night Center data must be treated as only tentative.
Policy Implications
1. The distribution of condoms and bleach on an
anonymous basis seems to have been very effective. When it was done on a regular basis, guests
were aware of it and few guests felt any inhibition about taking condoms or
bleach. On the other hand, some were
reluctant to ask staff for condoms or bleach.
Every shelter should consider adopting a practice of regular, anonymous
distribution of these critical AIDS prevention supplies.
2. Basic AIDS facts have been communicated
effectively to homeless persons. This
suggests that education efforts can be effective; expanded educational efforts
may be able to broaden knowledge about HIV transmission.
3. Risk reduction must be the ultimate goal of
AIDS prevention efforts. Making
prevention materials more accessible and increasing knowledge about HIV
transmission are necessary, but not sufficient steps to slow the spread of
AIDS.
4. Many guests had not received AIDS prevention
literature. Since distribution of
literature is relatively easy, more effective distribution methods should be
adopted. Although receipt of literature
does not guarantee reading or understanding, it is an important first step
toward increasing knowledge about AIDS.
5. Interest in AIDS education, including
education meetings, was very high, but participation in AIDS education meetings
had been very low. More efforts should
be made to publicize these meetings, to schedule them at convenient times, and
to try different formats that could relax inhibitions to participating.
6. Few guests had been tested for HIV, but most
of those who hadn't been tested wanted to be tested. Testing for HIV should be available as a part
of any shelter-based medical program, together with support services for those
guests who test positive. Opportunities
for testing should be publicized widely so that all those who are interested
can participate.
7. Most guests believed that individuals
infected with the AIDS virus were stigmatized by others. Clearly, preserving confidentiality of HIV
status must be seen as critical for the success of a testing program. In addition, efforts should be made to
increase tolerance of and understanding about HIV infection.
8. More education is needed to inform shelter
guests about the value of condom use even after HIV infection, as well as about
the actions that drug users can take to avoid HIV.
9. Black and Hispanic guests are at greater risk
for contracting AIDS, according to general population statistics, and should be
the subject of special education efforts:
on average, these guests were less well informed about AIDS but were
more interested in learning about AIDS than guests who were white.
10. Younger people are likely to be at more risk
of HIV infection. The somewhat higher
level of worry about HIV expressed by young people in this study suggests that
they should be targeted for more AIDS prevention activities. Social gatherings that are more attractive to
young people may provide an appropriate vehicle for reaching out more
effectively to them about AIDS prevention.
11. Depression influences AIDS awareness in ways
that should be taken into account in mental health and AIDS prevention
programs. Guests who feel depressed tend
to know less about AIDS and may perhaps best be approached about AIDS in the
context of delivering mental health services.
12. It is important
to make episodes of homelessness as brief as possible. The feelings of hopelessness associated with
longer spells of homelessness seem to decrease interest in trying to prevent
infection with HIV and lessen behavior change in response to shelter-based
prevention efforts.
13. In order to
have a large impact on knowledge about AIDS among homeless persons, large scale
programs over extended time periods probably are necessary. However, the difficulty of increasing
knowledge beyond the most basic level should not deter such efforts, as
misconceptions about HIV transmission inevitably increase the risk of HIV
infection. It may be important to place
greater emphasis on visual and verbal methods of distributing information, so
that those who read poorly are reached.
14. Evaluation of
the impact of prevention activities on the target population should make an
effort to measure extent of participation in risky behaviors directly.
15. Knowing someone
with AIDS was associated with more AIDS awareness. AIDS prevention programs might consider
sponsoring discussions led by persons living with AIDS, probably from outside
the shelter.
16. There was only
a weak association between self-reported drug use and behavioral change in
response to AIDS prevention efforts.
More intense efforts are needed to reach this key subgroup.
Appendix 1
Correlations Among Selected AIDS
Awareness Indicators
KNOWAID PREVENT
COMFORT INTEREST WORRY
Othr Worry
KNOWAID 1.0000
-.0570 .0413 -.1467
-.3938 .1917
(
88) ( 88)
( 87) (
87) ( 86)
( 78)
P= .
P= .299 P= .352 P= .088
P= .000 P= .046
PREVENT -.0570
1.0000 .1221 .2816
.0216 -.1646
(
88) ( 91)
( 87) (
87) ( 86)
( 78)
P= .299
P= . P= .130 P= .004
P= .422 P= .075
COMFORT .0413
.1221 1.0000 .0241
.0137 -.1575
(
87) ( 87)
( 87) (
86) ( 85)
( 78)
P= .352
P= .130 P= . P= .413
P= .451 P= .084
INTEREST -.1467 .2816
.0241 1.0000 .1883
-.0908
(
87) ( 87)
( 86) (
87) ( 85)
( 78)
P= .088
P= .004 P= .413 P= .
P= .042 P= .215
WORRY -.3938
.0216 .0137 .1883
1.0000 -.1581
(
86) ( 86)
( 85) (
85) ( 86)
( 76)
P= .000
P= .422 P= .451 P= .042
P= . P= .086
Others .1917
-.1646 -.1575 -.0908
-.1581 1.0000
Worry (
78) ( 78)
( 78) (
78) ( 76)
( 78)
Abt AIDSP= .046 P= .075
P= .084 P= .215 P= .086
P= .
Know -.1954
-.2202 -.0692 -.1494
.0751 -.0912
Someone ( 88)
( 90) ( 87) (
87) ( 86)
( 78)
w/AIDS P= .034
P= .019 P= .262 P= .084
P= .246 P= .214
Not Like -.1154 -.1140
-.2156 -.3002 -.2053
.2304
to be (
88) ( 88)
( 87) (
87) ( 86)
( 78)
Tested P= .142
P= .145 P= .022 P= .002
P= .029 P= .021
Ed. .1076
-.1370 -.1377 -.2409
-.2438 .1326
Affected( 87)
( 87) ( 86) (
87) ( 85)
( 78)
Own Beh.P= .161 P= .103
P= .103 P= .012 P= .012
P= .124
Ed. .2064 -.1354 -.2190
-.1843 -.1329 .1167
Affected( 87)
( 87) ( 86) (
87) ( 85)
( 78)
Others P= .028
P= .106 P= .021 P= .044
P= .113 P= .154
Imp. of -.1772
.2809 .1700 .7070
.3077 -.1836
AIDS Ed ( 85)
( 85) ( 84) (
85) ( 83)
( 76)
P= .052
P= .005 P= .061 P= .000
P= .002 P= .056
Appendix 2
SURVEY OF SHELTER GUESTS: 1990
AIDS
This next section contains
questions about AIDS, Acquired Immune Deficiency Syndrome. I'd like to ask what you have heard about
AIDS and what your concerns are.
37.
These days, there's a lot of talk about AIDS, Acquired Immune Deficiency
Syndrome. How much do you worry about
getting AIDS? ...
A LOT............1
SOMEWHAT.........2
NOT AT ALL.......3
38.
How much do you think other people here at the shelter worry about getting
AIDS?...
A LOT............1
SOMEWHAT.........2
NOT AT ALL.......3
39. Do you know anyone with AIDS?
YES..............1
NOT SURE.........2
NO...............3
40.
Now I'm going to read a list of things that people sometimes do. I'd like you to tell me whether you think
each of these things can give you AIDS.
Just answer yes or no.
YES NO (MAYBE)
Being near infected
people....................1 2 3
Hugging an infected
person....................1 2 3
Being bitten by an
insect.....................1 2 3
Having sex with an
infected person............1 2 3
Sharing needles
with drug users...............1 2 3
Giving
blood..................................1
2 3
A toilet seat used
by an infected person......1 2 3
Kissing an infected
person on the mouth.......1 2 3
Eating food
prepared by an infected person....1
2 3
41.
And now can you tell me whether you agree or disagree with the following
statements about AIDS? Just tell me
whether you agree or disagree.
AGREE DISAGREE
Sooner or later,
I'll probably get AIDS..........1 2
There's no cure for
AIDS.........................1 2
Infected people can
still feel healthy...........1 2
AIDS only affects
gay men........................1 2
The more sex
partners, the more the risk of AIDS.1
2
There's no way a
drug user can avoid AIDS........1 2
I'm a bit afraid of
being around infected people.1 2
It helps a lot to
use a condom (rubber)..........1 2
Only a blood test
tells if you are infected......1 2
People can do a lot
to avoid getting AIDS........1 2
Men can't get AIDS
from sex with a woman.........1 2
People
with AIDS die soon after they're infected.1
2
A
condom doesn't help once you're infected.......1 2
And
now a few questions about AIDS prevention at the shelter.
42.
Have you read any information about AIDS here at the shelter?
YES..............1
NOT SURE.........2
NO...............3
43.
Have you noticed condoms, that is, rubbers, available for people here at the
shelter?
YES..............1
NOT SURE.........2
NO...............3
44.
Have you ever received a greeting card with a condom and candy from staff here?
YES..............1
NOT SURE.........2
NO...............3
45.
Would you yourself feel comfortable taking a condom from a basket by the door?
YES..............1
NOT SURE.........2
NO...............3
46.
Would you feel comfortable asking a male staff member for a condom?
YES..............1
NOT SURE.........2
NO...............3
47.
Would you feel comfortable asking a female staff member for a condom?
YES..............1
NOT SURE.........2
NO...............3
48.
Have you noticed bleach bottles, for cleaning needles, available for people
here at the shelter?
YES..............1
NOT SURE.........2
NO...............3
49.
Would you yourself feel comfortable taking bleach from a basket by the door?
YES..............1
NOT SURE.........2
NO...............3
50. Would you feel comfortable
asking a staff member for bleach?
YES..............1
NOT SURE.........2
NO...............3
51.
Would you speak to a staff member here about AIDS, if you thought you might have
it?
YES..............1
NOT SURE.........2
NO...............3
52.
Would you like to get tested for AIDS?
YES..............1
NOT SURE.........2
NO...............3
HAVE BEEN TESTED.4
53.
Would you like to learn more about AIDS?
YES..............1
NOT SURE.........2
NO...............3
54.
Have you ever attended an AIDS education meeting here, or haven't you heard
about any?
ATTENDED.........1
HAVEN'T HEARD....2
HEARD, DIDN'T GO.3
55.
Would you attend an AIDS education meeting here in the future if it were at a
convenient time?
YES..............1
NOT SURE.........2
NO...............3
56.
Do you think that people with AIDS are treated pretty poorly by other people
who know they have AIDS?
YES..............1
NOT SURE.........2
NO...............3
57.
Do you think the shelter staff should do more to tell people about AIDS?
YES..............1
NOT SURE.........2
NO...............3
58. Have AIDS education efforts
here affected your own behavior?
YES..............1
NOT SURE.........2
NO...............3
59.
Does it seem to you that AIDS education efforts here have affected the behavior
of other guests?
YES..............1
NOT SURE.........2
NO...............3
60.
How important to you now is AIDS education? Is it..._______ important?
Not
at all............1
Slightly..............2
MODERATELY............3
CONSIDERABLY..........4
EXTREMELY.............5